My Immune Deficient Life

My medical story is long, convoluted and complicated.  I have multiple disorders linked to both genetic and immune dysregulation along with secondary disorders and complications.  I am in the high risk category of immune dysregulation, in that I have had cancer, I have at least two autoimmune diseases and I have an immunodeficiency.  What this […]

My Lipedema Life

The vast majority of people are unaware of fat disorders, thinking that anyone who looks obese, or has large limbs is from caloric intake alone.  But fat disorders indeed exist and I have inherited a condition called Familial Lipedema, a genetic fat disorder, from my mom.  My great-grandmom had it, my mom, me, and my […]

My Gumby Life

Everyone has at least one family member “famous” for a physical ailment.  Sometimes that is the only thing known about them to younger generations.  At family gatherings I frequently heard about “Grandma with the leg swelling” or “Great Aunt Bertie who weighed 600 pounds” or “everyone has bad arthritis after age 50” etc.  Well, at […]

My Humpty Dumpty Life

I have discovered over the past three years that I have at least five serious, rare, familial health problems that have morphed into twenty conditions.  Yes, I hit the jackpot and inherited all of the mysterious and unnamed familial symptoms linked with one or a few family members over the past five generations.  Now that […]

“Sixty shots of lidocaine on the wall”

Needle sharp shafts… pierce my skin… and leave their mark… with tiny burning flames…. I tense again and again…. my face a stoic mask…. I am too terrified to speak… afraid that what little bravery I hold… will spill out of these bloody marks…. Snakelike sheaths march up my veins… I taste the burning cautery… […]

The IRS is on the phone….

My husband and I did something really really stupid.  For two smart professionals we are mere infants when it comes to financial savvy.  My husband has a fatalistic view of America’s financial health and feels that a major crash is inevitable.  Based on that premise, he decided to take out some money from his retirement […]


I went to a Luau last night. I have been to several Luau’s in the past and this one was really fun!  It is the first time I saw the story of the Polynesian trip to Kauaii told in song and dance.  And the firedancer was truly amazing.  Unfortunately no pics allowed, so all you […]