Chronic Illness

My Immune Deficient Life

My medical story is long, convoluted and complicated.  I have multiple disorders linked to both genetic and immune dysregulation along with secondary disorders and complications.  I am in the high risk category of immune dysregulation, in that I have had cancer, I have at least two autoimmune diseases and I have an immunodeficiency.  What this […]

My Lipedema Life

The vast majority of people are unaware of fat disorders, thinking that anyone who looks obese, or has large limbs is from caloric intake alone.  But fat disorders indeed exist and I have inherited a condition called Familial Lipedema, a genetic fat disorder, from my mom.  My great-grandmom had it, my mom, me, and my […]

My Gumby Life

Everyone has at least one family member “famous” for a physical ailment.  Sometimes that is the only thing known about them to younger generations.  At family gatherings I frequently heard about “Grandma with the leg swelling” or “Great Aunt Bertie who weighed 600 pounds” or “everyone has bad arthritis after age 50” etc.  Well, at […]

My Humpty Dumpty Life

I have discovered over the past three years that I have at least five serious, rare, familial health problems that have morphed into twenty conditions.  Yes, I hit the jackpot and inherited all of the mysterious and unnamed familial symptoms linked with one or a few family members over the past five generations.  Now that […]

“Sixty shots of lidocaine on the wall”

Needle sharp shafts… pierce my skin… and leave their mark… with tiny burning flames…. I tense again and again…. my face a stoic mask…. I am too terrified to speak… afraid that what little bravery I hold… will spill out of these bloody marks…. Snakelike sheaths march up my veins… I taste the burning cautery… […]

My doctor was not happy with me!

I saw my psychiatrist today and told him my story about the shaking and anxiety symptoms and that I stopped everything. “Those symptoms are not from anxiety.  You have blah-blah-blah-blah”.  Some long word that meant I was having a reaction from the Abilify. And as Drs do, he started me on a medication to stop […]

Im just a mess…no more

Hi, I’m Lori and I’ve been a hot mess. It’s a hard reality to admit to myself, let alone write that little sentence on my blog.  But I have been struggling since Summer, first with depression, then with an attack of OCD, then with an attack of irritable anger, then with an attack of severe anxiety.  […]